Tag Archives: tangle

As Sarepta, FDA tangle over Duchenne therapy, families are caught in the middle

As Sarepta, FDA tangle over Duchenne therapy, families are caught in the middle

Jennifer Hill Blair recognized the Cincinnati number on her buzzing phone and slipped out of the school meeting, excited to finally learn when her son Cayse would receive a therapy she believed would change his life. Blair, a second-grade teacher in southern Mississippi, and her husband had been fighting the state insurer since April, calling senators and representatives to lobby …

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